{"id":1788,"date":"2019-11-23T09:31:59","date_gmt":"2019-11-23T14:31:59","guid":{"rendered":"http:\/\/control-h.org\/wordpress\/?p=1788"},"modified":"2019-11-23T09:31:59","modified_gmt":"2019-11-23T14:31:59","slug":"twenty-three-2","status":"publish","type":"post","link":"https:\/\/control-h.org\/index.php\/2019\/11\/23\/twenty-three-2\/","title":{"rendered":"Twenty-three"},"content":{"rendered":"\n

Describe your most recent doctor visit. I\u2019m specifically looking for the one(s) you see most often. (reach-back to 2016)<\/em><\/p>\n\n\n

\n\n\n

From November 12, 2016.
<\/p>\n\n\n

I\u2019m not exactly sure what I was thinking when I wrote this prompt. Maybe I should have consulted my calendar before i wrote.<\/p>\n\n\n

My two most-recent visits were with specialists. One to replace the folks likely responsible for my two hospital stays this month. The other was to see what\u2019s going on with something else in my messed-up body.<\/p>\n\n\n

I guess my most recent medical visit was with my longtime dentist<\/a>. I\u2019ve been seeing the guy pretty much continuously since I was in high school. My medical issues have definitely included attack on my teeth; he\u2019s been helping keep me sort of functioning. Yesterday\u2019s visit was for a cleaning. I have to get an extra one each year because my disease modifying drug affects my oral bacteria. That said, no cavities!<\/p>\n\n\n

As for regular medical stuff, I\u2019ve been seen at Ghent Family Medicine at Eastern Virginia Medical School since the day that I had the MRIs that led to my diagnosis.<\/p>\n\n\n

I should probably write a counter to this lousy Yelp<\/a> review. They\u2019ve been great for me, especially last year when my oh-so-wonderful Healthcare.gov<\/a> plan wasn\u2019t accepted by the two specialists I\u2019d been seeing.<\/p>\n\n\n

Dr. Robert Newman<\/a> is my primary care physician. He helped find new specialists, including my new neurologist, Dr. Kuczma<\/a>. I also have to tip my hat to Dr. Thomas Grant<\/a>, who has looked after me for several years at EVMS.<\/p>\n\n\n

My last visit was with a resident at EVMS (who I\u2019d link, but I can\u2019t find her bio right now….Dr. Jodi Newcombe). I was there to follow up with them after my second hospitalization, and to get a prescription refilled. She was one of the residents I recommended to my wife after the one she\u2019d been seeing left. My wife ended up with the other one, who\u2019s since left for a fellowship, but she went with me to my last visit with Dr. Newcombe. \u201cI like her!\u201d<\/p>\n\n\n

I do normally end up seeing a resident when I\u2019m there; that\u2019s what the clinic is for. At the same time, part of the reason I decided to go there is that when I was looking for regular medical care, I had no idea what the fuck was wrong with me. At a medical school, there should always be more than one opinion.<\/p>\n\n\n

Sometimes, though, I do think the professors take some sick sadistic pleasure in sticking a rookie resident with me.
\u201cDo you have x<\/em> or y<\/em>?\u201d
\u201cYes.\u201d
\u201cWell, which one?!\u201d
\u201cBoth. Depends on the hour. Check my record; I have multiple sclerosis.\u201d \u201cOh.\u201d brow furrow<\/em> \u201cOHHHHH.\u201d<\/p>\n\n\n

As I said, I went as a followup after my hospital stay in October.<\/p>\n\n\n

It was also an opportunity to get my flu shot. I don\u2019t know if there\u2019s some academic group that gives them brownie points for handing them out, but I\u2019ve gotten the flu shot every year since I\u2019ve been going there. Magically, I\u2019ve not gotten the flu. It\u2019s like it works or something.<\/p>\n\n\n

My wife did get the flu last year, so she got hers on the last trip, too.<\/p>\n\n\n

But the way the clinic works, you\u2019re seen by a resident, then normally the supervising faculty member, like Grant or Newman, comes in to check over whatever the resident did.<\/p>\n\n\n

Occasionally, they\u2019ll change things. This past spring, I managed to fall getting off the bus. Validating gravity\u2019s function \u2013 it\u2019s one of the things those of us with perpetually-numb feet and vertigo issues do. The resident wanted to send me for a bunch of X-Rays; the faculty supervisor came and checked me out, and decided against it.<\/p>\n\n\n

Yes, I was sore for a long time, but I\u2019ve recovered. Lasting soreness implies I\u2019m getting old or something.<\/p>\n\n\n

Monday, I\u2019m going up to see if I might be an appropriate candidate for studies<\/a> at Georgetown.<\/p>\n\n\n

I did a study on some thing that didn\u2019t work, previously. This failure pretty much made me swear off serving as a test subject, but I am intrigued by this<\/a>, and think Georgetown might be one of the places on the East Coast where they might try it. I also have zero reservations about using my own cultured stem cells.<\/p>\n\n\n

We\u2019ll see how it goes.<\/p>\n\n\n

\n\n\n

Writing early today as I’m home alone; my wife is out shopping.<\/p>\n\n\n

Reading the entry from 2016 was interesting. Hard to believe it’s been three years. <\/p>\n\n\n

I did end up in the greater DC area courtesy my wife. Though she probably ended up doing the visit back then free of charge, Dr. Amjad<\/a> did wind up as my neurologist after I moved north.<\/p>\n\n\n

(An aside: I do really appreciate what she’s done with me as I cam up to Georgetown kind of on a lark. My thinking was, “is there a medical school somewhere on the Northeast Regional<\/a> where I could get to the doc and back from Norfolk in one day. New York and Boston were multi-day trips. I might<\/em> be able to pull off Baltimore, so JHU. Philly or NYC would be tough. Boston almost certainly impossible. I didn’t really even think about GW until I actually moved up here. Searching for places doing interesting MS research, I did find some very interesting stuff at George Washington<\/a>. Oh! This looks cool! And I can get in and out of GWU pretty easily. I’ll try to find someone there! After three rounds of call transfer roulette, I emailed Dr. A., and she agreed to take me on as a patient. Since then, I’ve actually moved my infusions to Georgetown. Yes, there have been some oddities getting in and out, and with scheduling, but I have nothing but nice things to say about the nursing staff at the CRU<\/a>.)<\/p>\n\n\n

So, last visit? I think it probably would have been to the CRU for an infusion. I get those every five weeks these days. It could also have been my head doc<\/a>, who I see about every two weeks.<\/p>\n\n\n

If it was the infusion, it went pretty smoothly, although there was some strangeness with the check-in. <\/p>\n\n\n

If it was Dr. V., it would have been after my second night in my new place. Still takes a long time to get to her place, but it’s certainly not as expensive. <\/p>\n\n\n

I need to find a new PCP and dentist. I really liked the folks at EVMS (where I have links to a couple of the docs who cared for me there….and this was before the neo-Byrd Organization<\/a>‘s poster child photo as a Klamsman, or in blackface came out….<\/p>\n\n\n

So, lots of docs, although fewer visits the past couple of years. I think<\/em> they’ve started to figure out WTF is wrong with me.<\/p>\n\n\n

I cannot imagine that I would have gone another 20+ years with various docs not knowing; my symptoms have increased so much that it’s impossible to hide anymore.<\/p>\n\n\n

At this point, though, I don’t have many reservations. Do whatever you want to me. Experiment on me if others might benefit. If I die, whatever.<\/p>\n\n\n

And, see, that touches on some of the things I’ve been working on with Dr. V. I have a somewhat-reckless disregard for personal safety lately. What can you do to hurt me? I can’t seem to really do it to myself. Maybe someone can.<\/p>\n\n\n

And now I’m stopping.<\/p>\n","protected":false},"excerpt":{"rendered":"

Describe your most recent doctor visit. I\u2019m specifically looking for the one(s) you see most often. (reach-back to 2016) From November 12, 2016. I\u2019m not exactly sure what I was thinking when I wrote this prompt. Maybe I should have consulted my calendar before i wrote. My two most-recent visits were with specialists. One to […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[6],"tags":[26],"class_list":["post-1788","post","type-post","status-publish","format-standard","hentry","category-national-journal-writers-month","tag-nojomo"],"_links":{"self":[{"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/posts\/1788","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/comments?post=1788"}],"version-history":[{"count":0,"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/posts\/1788\/revisions"}],"wp:attachment":[{"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/media?parent=1788"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/categories?post=1788"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/tags?post=1788"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}