\nSo, the nurse lied to me over the phone last week. I have two new lesions since December, one of which was active during the scan.<\/em>
\nStaying on the Copaxone for three more months. Anotehr MRI in November.<\/em>
\nThere\u2019s now a blood test for the virus that causes PML associated with the Tysabri. I guess about half the population have been exposed to the virus, and, therefore, shouldn\u2019t use Tysabri.<\/em>
\nPfffftbt.<\/em>
\nI don\u2019t really know what more to say. Don\u2019t like waking my wife up with less-than-good news.\ud83d\ude41<\/em>\n<\/div>\n
\n
That definitely feels like another time in my life.\u00a0 Copaxone sucked for a variety of reasons, but it wasn’t the hell that the next two DMDs would be.\u00a0\u00a0(Disease Modifying Drugs)<\/em> I thought earlier today, counting on my fingers, that I was okay on the days. Nope, I’m still a day early.\u00a0 Oops. That said, at least someone actually did read some of what I said yesterday.\u00a0 If I was petty about it, I might complain that it only took 28 entries. So flashback time…. 8\/17\/2011 […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[16],"class_list":["post-1983","post","type-post","status-publish","format-standard","hentry","category-summer-writing","tag-hot-writing"],"_links":{"self":[{"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/posts\/1983","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/comments?post=1983"}],"version-history":[{"count":0,"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/posts\/1983\/revisions"}],"wp:attachment":[{"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/media?parent=1983"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/categories?post=1983"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/tags?post=1983"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}
\nThe second seriously had me considering taking the Red Line like Kate Mara on\u00a0House of Cards.<\/em>
\nThe third completely screwed up my lower half, and gave me nice hives.\u00a0 I did have another exacerbation on it, too, though the neurologist kept me on it because the flare stopped after IV steroids.
\nThen I had to find new specialists because none of the ones I’d been seeing accepted my plan from Healthcare.gov.\u00a0 It was awesome.
\nBack to the Copaxone, though.\u00a0 I wrote that a few weeks before my wife and I went on our year-delayed honeymoon.\u00a0 (Yes, we had our first anniversary in New Orleans.\u00a0 She’d forgotten about it, and was more than a little surprised when flowers were delivered to our hotel room….)
\nBut it was some nice time away.\u00a0 People at work today were razzing me about something NOLA-related.\u00a0 I called someone a Saint. compared to someone else.\u00a0 (I think I called Bill Gates a saint when you look at him next to Larry Ellison.)
\nSo.\u00a0 My usual line about the Saints — “I’ve been a Saints’ fan since before Jim Mora was famous for ‘Playoffs?!'”\u00a0 So before the information about Greggggggg’s bounty scandal came out.\u00a0 Before the hiring of Buddy Ryan Jr.-B.\u00a0 Before #BlewDat.
\n“Blew Dat” is actually the name of one of my fantasy teams this year.\u00a0 I need to figure WTF is going on with the other league(s).
\nSomething to do this weekend.
\nBut, all in all, a pretty successful week, I think.\u00a0 My ticket queue is nearly empty (and all but one of those is almost finished)\u00a0 I got my Tysabri infusion.
\nSo time to go do weekend stuff.<\/p>\n","protected":false},"excerpt":{"rendered":"