{"id":2091,"date":"2016-11-16T13:02:12","date_gmt":"2016-11-16T18:02:12","guid":{"rendered":"http:\/\/control-h.org\/?p=2091"},"modified":"2016-11-16T13:02:12","modified_gmt":"2016-11-16T18:02:12","slug":"fourteen-4","status":"publish","type":"post","link":"https:\/\/control-h.org\/index.php\/2016\/11\/16\/fourteen-4\/","title":{"rendered":"Fourteen"},"content":{"rendered":"\n

On being sick.<\/em><\/p>\n\n\n\n

I understand why I chose this prompt for this date.  I wrote much of this on the train heading to Washington DC to visit the folks at Georgetown School of Medicine.  I wrote a bit about it recently.<\/p>\n\n\n\n

The potential to get some of my life back would be worth getting my femurs drilled and Humira, or chemotherapy.<\/p>\n\n\n\n

This is not a condition I\u2019d wish on my worst enemy.  (And if you know who my worst enemy is, please let me know, because I really don\u2019t know who\u2019d that\u2019d be at this point.  There is one individual I\u2019ve dealt with professionally, recently, that I\u2019d just assume never speak to again, but\u2026)<\/p>\n\n\n\n

So, I find myself trying to decide what would be the best way to tackle this.<\/p>\n\n\n\n

The less-pleasant parts I really don\u2019t feel like relating, but they\u2019re all a part of the overall experience.<\/p>\n\n\n\n

The most maddening part, though, is not one of the more disgusting things, honestly.  I really am nearly blind these days.  When I was younger, I\u2019d say that I\u2019d much rather lose my vision than my hearing.  I was working in radio, and there was the big story about the things Rush Limbaugh was going through with his opioid0induced hearing loss.<\/p>\n\n\n\n

Obviously, working in radio without being able to hear would be very difficult.  But doing just about anything without decent vision is just as tough.<\/p>\n\n\n\n

No, I really can\u2019t see what you\u2019re pointing out.<\/p>\n\n\n\n

No, I can\u2019t tell the difference between those colors.  (And this is more than being lectured on the differences among cream, Ivory, and other shades of white.)<\/p>\n\n\n\n

Saturday, we took my mother to the football game between her alma mater, and my wife\u2019s school.  Not only did her school not even who up, I couldn\u2019t really see anything that was going on on the field.  Getting up and down to our sets with the stadium steps with no handrails was difficult enough, but…..<\/p>\n\n\n\n

It was also rather chilly.  Normally the cold doesn\u2019t bother me much anymore, unless I\u2019m out in it for a long time.<\/p>\n\n\n\n

So, not a particularly enjoyable experience.  I think my mom had a good time, though, which is what matters.  She and my wife got to experience the sorts of things I deal with being reliant upon public transportation.  You can get pretty much where you need to go, but it takes a long time.  I guess it took probably about 40 minutes to get from our place to the university;  it\u2019s fifteen by car.<\/p>\n\n\n\n

At the same time, it probably cost as much in transit fare as it\u2019d have cost to park near the stadium.    And no need for a long-distance walk.<\/p>\n\n\n\n

I can still walk some, sorta.  I\u2019m good for about a block and a half most days.<\/p>\n\n\n\n

Trying to get though this is annoying me.  I guess I\u2019ll revert to the list<\/a> from NMSS.  It might be easier to say which of those more common symptoms I don\u2019t<\/strong> have.<\/p>\n\n\n\n

I really don\u2019t have emotional changes or cognitive changes.  The others listed I do have to some extent.<\/p>\n\n\n\n

The less common symptoms, really, I only deal with a few.<\/p>\n\n\n\n

\u2013cut\u2013<\/p>\n\n\n\n

So, the appointment went okay.  I have a prompt for a couple of days in the future to write about it more thoroughly.<\/p>\n\n\n\n

At this point, since I\u2019m on the Tysabri, I should stick on that until it quits working, or I test positive for JC Virus<\/a>.<\/p>\n\n\n\n

Who knows.<\/p>\n\n\n\n

Initial impression:  They\u2019ve got their stuff together, and I think I\u2019d be happy to be treated there if\/when we move up.  It\u2019s probably an older facility, but they\u2019re doing some of the newer interesting research work.  That matters to me.<\/p>\n\n\n\n

Much as I appreciate EVMS, MS isn\u2019t a big focus.  If I had diabuatteus \/Wilford_Brimley_voice, I\u2019d be interesting.<\/p>\n\n\n\n

As I said, I will see what happens.<\/p>\n\n\n\n

We are sticking with the same insurance arrangement as this year  Yes, it\u2019s going to cost something like $120\/mo. more.  Yes, it\u2019s all after-tax.  But I\u2019m in a strange employment situation, and this is what I have to deal with courtesy the Patient Protection and Affordable Care Act.<\/em><\/p>\n\n\n\n

That\u2019s probably going to go away with the minor change in government, but I\u2019m sure it\u2019s going to take awhile.<\/p>\n\n\n\n

I could probably write more, but I\u2019m tired. My current debate is whether I try to make it in to the office tomorrow. Or work from home. I don\u2019t know.<\/p>\n","protected":false},"excerpt":{"rendered":"

On being sick. I understand why I chose this prompt for this date.  I wrote much of this on the train heading to Washington DC to visit the folks at Georgetown School of Medicine.  I wrote a bit about it recently. The potential to get some of my life back would be worth getting my […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[6],"tags":[],"class_list":["post-2091","post","type-post","status-publish","format-standard","hentry","category-national-journal-writers-month"],"_links":{"self":[{"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/posts\/2091","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/comments?post=2091"}],"version-history":[{"count":0,"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/posts\/2091\/revisions"}],"wp:attachment":[{"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/media?parent=2091"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/categories?post=2091"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/tags?post=2091"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}