{"id":2181,"date":"2015-11-29T14:59:33","date_gmt":"2015-11-29T19:59:33","guid":{"rendered":"http:\/\/control-h.org\/?p=2181"},"modified":"2015-11-29T14:59:33","modified_gmt":"2015-11-29T19:59:33","slug":"twenty-nine-3","status":"publish","type":"post","link":"https:\/\/control-h.org\/index.php\/2015\/11\/29\/twenty-nine-3\/","title":{"rendered":"Twenty-nine"},"content":{"rendered":"\n<p><em>What are you most proud of this year?<\/em><\/p>\n\n\n\n<p>This is a tough one, because I\u2019m really not proud of where I am in a lot of areas of my life. A lot of it has been happenstance, but I pride myself in my ability to adapt to the circumstances.<\/p>\n\n\n\n<p>For this year, though, I guess it\u2019d be dealing with my disease. I was in a tough situation early in the year, then found that my doctors didn\u2019t accept my new insurance.<\/p>\n\n\n\n<p>My company\u2019s insurance, which has zero local coverage, I\u2019d declined, so I ended up buying a plan from the Federal Exchange. Incredibly expensive; so much for affordable care. My primary care docs at EVMS, especially Drs. Grant and Newman, have been so helpful in finding new specialists.<\/p>\n\n\n\n<p>So, I got a new neurologist. She worked with me to find the best disease modifying drug for me. That ended up being Tysabri. But getting to the point where I could take As a monthly infusion, with periodic blood tests, Tysabri required me getting better with venous puncture.<\/p>\n\n\n\n<p>So, I\u2019ve done that. I\u2019ve also worked faithfully, despite an incredibly bad work situation.<\/p>\n\n\n\n<p>I could dig and find something else, perhaps, but I really don\u2019t think anything would come close. Nothing\u2019s had a bigger effect on my life. I feel better than I have in I don\u2019t know how long.<\/p>\n\n\n\n<p>I wish I\u2019d done a few things differently which would allow me to enjoy this newfound \u201chealth\u201d more, but\u2026<br><\/p>\n","protected":false},"excerpt":{"rendered":"<p>What are you most proud of this year? This is a tough one, because I\u2019m really not proud of where I am in a lot of areas of my life. A lot of it has been happenstance, but I pride myself in my ability to adapt to the circumstances. For this year, though, I guess [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[6],"tags":[],"class_list":["post-2181","post","type-post","status-publish","format-standard","hentry","category-national-journal-writers-month"],"_links":{"self":[{"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/posts\/2181","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/comments?post=2181"}],"version-history":[{"count":0,"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/posts\/2181\/revisions"}],"wp:attachment":[{"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/media?parent=2181"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/categories?post=2181"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/tags?post=2181"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}