{"id":3919,"date":"2022-08-09T19:56:07","date_gmt":"2022-08-10T00:56:07","guid":{"rendered":"https:\/\/control-h.org\/?p=3919"},"modified":"2022-08-09T19:56:07","modified_gmt":"2022-08-10T00:56:07","slug":"nine-11","status":"publish","type":"post","link":"https:\/\/control-h.org\/index.php\/2022\/08\/09\/nine-11\/","title":{"rendered":"Nine"},"content":{"rendered":"\n<p>I still have somethings when it comes to getting things accomplished.  Long day is long, but I still have a couple more hours of work to do.<\/p>\n\n\n\n<p>I&#8217;m in such a better place now than I was when I wrote this:<\/p>\n\n\n\n<p>From 2017:<\/p>\n\n\n\n<p><em>t\u2019s been more than a week since I had my Tysabri infusion. I don\u2019t feel as strange as I did just after. I am still a bit fatigued, but, it\u2019s not affecting me significantly. My neck hurts, which is different. I\u2019ve had pain in my neck, that went down from just behind my right ear all the way to my right elbow since just around the time I was diagnosed<\/em><\/p>\n\n\n\n<p>If you&#8217;d told me back then that I&#8217;d have been on this stuff this long, I&#8217;d have told you that you were nuts.<\/p>\n\n\n\n<p>Down to every six weeks, now.  I was really kind of feeling the exhaustion last week, but I don&#8217;t think that was due to it being towards the end of my does.  No, it&#8217;s probably because I wasn&#8217;t sleeping well.<\/p>\n\n\n\n<p>I did notice something in one of my news alerts recently that a &#8220;biosimilar&#8221; version of Tysabri is on the way <a href=\"https:\/\/www.managedhealthcareexecutive.com\/view\/biosimilar-to-tysabri-for-relapsing-remitting-ms-on-the-way\" target=\"_blank\" rel=\"noreferrer noopener\">really soon now<\/a>.<\/p>\n\n\n\n<p>I should look back at what I wrote back when I was starting Tysabri.  Though I didn&#8217;t really admit it, I was as scared as I&#8217;ve been as an adult.<\/p>\n\n\n\n<p>I&#8217;m wondering if surviving that is part of what&#8217;s been going on where I&#8217;m lacking some of the fear I&#8217;d normally have of things.  Who knows?<\/p>\n\n\n\n<p>News.  Not going to link a specific story, but the DOJ raided President Trump&#8217;s house last night.  Really?  I don&#8217;t like the guy, but this is banana republic  stuff.  I thought the <em>Reason<\/em> take on it was <a rel=\"noreferrer noopener\" href=\"https:\/\/reason.com\/2022\/08\/09\/fbi-raids-mar-a-lago-fueling-claims-of-political-persecution\/\" target=\"_blank\">pretty suspect<\/a>.<\/p>\n\n\n\n<p>Ten more days.  Ten more days to write.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>I still have somethings when it comes to getting things accomplished. Long day is long, but I still have a couple more hours of work to do. I&#8217;m in such a better place now than I was when I wrote this: From 2017: t\u2019s been more than a week since I had my Tysabri infusion. [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-3919","post","type-post","status-publish","format-standard","hentry","category-summer-writing"],"_links":{"self":[{"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/posts\/3919","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/comments?post=3919"}],"version-history":[{"count":0,"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/posts\/3919\/revisions"}],"wp:attachment":[{"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/media?parent=3919"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/categories?post=3919"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/tags?post=3919"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}