{"id":4729,"date":"2024-11-18T15:37:51","date_gmt":"2024-11-18T20:37:51","guid":{"rendered":"https:\/\/control-h.org\/?p=4729"},"modified":"2024-11-18T15:37:51","modified_gmt":"2024-11-18T20:37:51","slug":"18-3","status":"publish","type":"post","link":"https:\/\/control-h.org\/index.php\/2024\/11\/18\/18-3\/","title":{"rendered":"18"},"content":{"rendered":"\n

Let’s write about MS.<\/em><\/p>\n\n\n\n

Flashback to question from 2017, and what I was tentatively examining back then.<\/p>\n\n\n\n

\n\n\n\n

Are you listed as an organ or bone marrow donor? Why or why not?<\/strong>
Yes. Because I really don\u2019t need them after I\u2019m dead; what do I care?
Whether there\u2019d be much to salvage from my diseased body is a different story, altogether.<\/p>\n\n\n\n

So, more 2012 recycling….<\/p>\n\n\n\n

You see what I wrote above, so again….<\/p>\n\n\n\n

Are you listed as an organ or bone marrow donor? Why or why not?<\/em><\/p>\n\n\n\n

I don\u2019t know? I don\u2019t have a driver\u2019s license anymore, so I don\u2019t think I had to answer the question about the organ donor bit.<\/p>\n\n\n\n

Would anyone want my bone marrow with the various maladies I\u2019ve developed, the abuse to which I\u2019ve subjected my body? I don\u2019t know.<\/p>\n\n\n\n

It\u2019s incredible how heavy<\/strong> these questions seemed back then. Today, who really cares? By and large, anything that\u2019s in my body can be used by whoever needs it.<\/p>\n\n\n\n

I have told my wife that I would like whatever\u2019s left of me to be fired into the sun. If they haven\u2019t figured out the process when it happens, cremation works.<\/p>\n\n\n\n

I hope that I\u2019ll find motivation to do a few more in-advance prompts tonight\/tomorrow. I\u2019ll probably spill my Thanksgiving plans Monday, then write about how it went on Friday.<\/p>\n\n\n\n

\n\n\n\n

I had a pointer here wanting to write about how the hopes of success on this were vanquished. My skills searching the web are really failing on this. NHI study<\/a>. It looks like a lot of the promise Dr. Zamboni<\/a> had found weren’t reproducible. <\/p>\n\n\n\n

I remember reading MRI results not terribly long ago where the analyst did seek to rebut the CCSVI diagnosis on my results; my head drains just fine.<\/p>\n\n\n\n

Nobody knows what<\/em> caused<\/em> my<\/em> MS.<\/span><\/strong><\/p>\n\n\n\n

I’ve been on Keysimpta since last summer. I really don’t know how well, or if, it’s working. I don’t think I really wrote too much about starting my current DMT.<\/p>\n\n\n\n

The first half-dose of it was absolute hell. the second wasn’t fun. The third half-dose wasn’t really much to talk about. Then onto the regular once-a-month schedule. Oddly enough, my day-of-the-month for taking it is the 29th, which worked this year. I don’t know what I’ll do in future years, since for 75% od years, there’s no February 29th. <\/p>\n\n\n\n

Since I’ve been on the drug, I’ve noticed some end-of-dose weirdness a few times. I do wonder if I’ve had at least one exacerbation, but I won’t know until I have an MRI this summer.<\/p>\n\n\n\n

But are the somewhat-strange things I’ve had going on just because I’ve been over-exerting myself?<\/p>\n\n\n\n

I don’t know.<\/p>\n\n\n\n

I’m going to stick with the exercise stuff I’ve been doing at least through the end of the year. I don’t know what I’ve really seen a ton of benefits yet aside from increases in strength and endurance. I don’t know that there’s that much discernable benefit yet; I haven’t lost that much weight.<\/p>\n\n\n\n

My balance certainly is better despite falling this morning after being startled by a dog in the complex.<\/p>\n\n\n\n

\"\"<\/figure>\n\n\n\n

Hey! Can you take out the things in the flower beds with thorns?<\/p>\n\n\n\n

But I’m going to forego the new COVID shots. I don’t know that I’d get any benefit from it, and I don’t want to do anything until I’m sure that everything’s settled with the DMT.<\/p>\n\n\n\n

I do have another colonoscopy next year.<\/p>\n\n\n\n

I wish there was a way to combine the propofol for both procedures. I wouldn’t care at all about being stuck in the tube if I was on that…..<\/p>\n\n\n\n

But, thankfully, I think I’m finished for the year with medical stuff.<\/p>\n\n\n\n

But I did finish a lot of my most-pressing work. Hopefully I can finish paying my protection to the certification cabal again, and be finished.<\/p>\n\n\n\n

I’ve tried to get things set up for the final Shmoocon, but haven’t gotten a response so far. I want to buy two of the sponsor-a-student tickets to make sure I can go, and maybe set up one of my friends who’ve been around for a long time.<\/p>\n\n\n\n

.<\/p>\n\n\n\n

Along those lines, I’m halfway tempted to see about setting up an alternate version at the Wardman Park Marriott again just for commiseration.<\/p>\n\n\n\n

You member when the glass roof collapsed?<\/p>\n\n\n\n

Yeah, I member.<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Let’s write about MS. Flashback to question from 2017, and what I was tentatively examining back then. Are you listed as an organ or bone marrow donor? Why or why not?Yes. Because I really don\u2019t need them after I\u2019m dead; what do I care?Whether there\u2019d be much to salvage from my diseased body is a […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[6,8],"tags":[],"class_list":["post-4729","post","type-post","status-publish","format-standard","hentry","category-national-journal-writers-month","category-shmoocon"],"_links":{"self":[{"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/posts\/4729","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/comments?post=4729"}],"version-history":[{"count":0,"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/posts\/4729\/revisions"}],"wp:attachment":[{"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/media?parent=4729"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/categories?post=4729"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/control-h.org\/index.php\/wp-json\/wp\/v2\/tags?post=4729"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}