Month: November 2017

Today’s key? Traceability. If you call me on something, and I make an assertion, rest assured I will back it up.
Recycling more……

NoJoMo Day 4 – 11/4/2012

Since I don’t have a tome for either, I’ll try to address both writing prompts. Instead of an extra hour of sleep, I’ll attempt an extra few minutes of writing.

1. What do you desire most in your life? What is holding you back from obtaining or achieving your heart’s desire?

At this point, normalcy. It’s very absent for anyone with somewhat fragile health. I have my soulmate. I had professional potential (though I have my doubts about it since my vision started going). The routines in life, however, are gone — possibly forever. I can’t know on a day-to-day basis how I’m going to feel, whether I’ll be up to whatever I have planned.

That’s put a strain on many other relationships I had. My wife is understanding; she sees what’s going on. Others don’t. But I don’t look sick! Yeah, and you don’t look stupid; looks can be deceiving.

I don’t feel comfortable around other family members for other reasons, too. There’s been a lot of bereavement in the past few years. Nothing, other than this little apartment with my wife, feels like “home.” When we stayed with my mom last year during Irene, it just felt strange. Visiting my grandfather and uncle after my dad died felt strange.

Thanksgiving with her parents will be a bit more comfortable (I am starting to feel a bit more at home at her parents’ place…..it has taken six years, but….), but I’ll be worried about what my mom is doing.

2. What is your strangest tic or habit? For example feeling compelled to sniff your food before eating it or always counting steps when you go up or down stairs.

Uhhh…..<b>I have MS</b>. I have lots of “strange” things. Some of them aren’t terribly noticable if you’re not paying attention. My left foot doesn’t point straight ahead. My gait is weird. I can’t run at all. My eyes do weird dances. Restless Leg Syndrome? Uh, no. But I do have similar twitches.

I also have “angry hands.” I do do this thing where I interlace my fingers when I’m frustrated with something.<hr>
*yawn*
Yeah, time to post up, and try to sleep. Aint’s aren’t until Monday night. But watching Eli Manning beat the Falcons will suffice.

1. What do you desire most in your life? What is holding you back from obtaining or achieving your heart’s desire?
Last time, I said, “normalcy.”  If I’d known then what I know now, I don’t know that I would have wished for something different, really.  I was completely consumed with my health, not taking into account that on some of the important parts of life, I did have normalcy.
Now, though, I’m aiming to get back to where I was then, financially.  I’m still earning less money than I did then.  I’m not at all secure, financially.  At the same time, what I’m ready for is something new and satisfying.  What I’m doing now is somewhat related to one of my stops in the intervening years.  But it still is a fucking cesspool  Though my main problem before is gone, his mentality pervades.
It takes time to win hearts and minds;  will I be able to do it?  Do I have the stamina?
2. What is your strangest tic or habit? For example feeling compelled to sniff your food before eating it or always counting steps when you go up or down stairs
Since the last time, I’ve started carrying a cane.  I really have problems going down stairs, as my balance is wonky, and I can’t feel my feet.  I also need to tilt my head to the right in order to be able to walk in a straight line.  The angry hands have subsided a lot.  A lot of that probably has to do with the fact that I often have my hands above my head to stretch my diaphragm.

What I wrote in 2012:
NoJoMo Day 1 – 11/1/2012
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Writing Prompt: What has been your biggest accomplishment in your life so far?

Have spent a lot of time considering what I should choose for this; I don’t focus much on past accomplishments. Not terribly long ago, I was complaining about the Captain Philip Francis Queeg school of management. Queeg, of course, spent his entire career trying to recreate his few moments of adequacy. I try hard to avoid that.

My focus, professionally, is creating a workable solution at a low cost. Sometimes finding that solution requires setting aside what you’ve done in the past, and re-examining everything.

Getting married has definitely affected my evaluation criteria. Things I would have taken pride in as a single dude really aren’t important anymore. Woohoo! I drank an entire six pack in one sitting! Big fucking deal to most frat boys. My wife, however, would be disgusted by that behavior.

So, since I can’t isolate a single thing, I’ll just throw some things out of which I’m proud:

1. That I married someone who might possibly be my perfect partner.
2. That I’ve yet to miss a dose of any of my MS meds, now more than two years’ into taking them.
3. That I am dedicated to work, despite more than ample reason not to be.
4. My service to others. Some of it is kind of thankless, but…. The vast majority of it’s been without compensation. Is it satisfying when something I put together is still functional years after its expected demise? You bet. As far as I know, there’s systems in use at former jobs. My old company, whose name I will not mention, is still selling things I designed. Something I put together now almost seven years ago is still chugging along. And so on.
4. That I surpassed the 2,000 entry mark, and didn’t even notice it.
5. That I’ve been responsible elsewhere in my life last few years. I was reckless when I was younger. I admit that now. Yes, being sick has sapped my reckless abandon on some things, but I’d started down that path before I knew I was sick.
6. Forgiveness. I’ve gotten better about it. Those who’ve harmed me may not be as dear as they once were, but I’m still civil. When I was younger, I probably wouldn’t have been.

So, is there a lot to point to, there? Yes. Is there a “crowning achievement?” No. (Though number one comes awfully damn close…..I still haven’t figured out how I pulled that one off while still being myself….) I’m okay with that.

I did delete the comments.  Now again….
What has been your biggest accomplishment in your life so far?
I could go a lot of different ways on this one, but I don’t know if there’s really anything that’s that remarkable.
As I said earlier this month during a rant about the previous generation, yes, you’re unique, but you’re not that remarkable/special.
The same is true of me.
The Kids In The Hall used to have a character who’d be dropped in to various sketches. The interaction was inevitably along the lines of,
“Who are you?”
“Just a guy.”
I am important to some people who love me.
To everybody else, though, I’m just some guy.
I can’t tell you how foreign this seems to be.
People are fungible.
This past weekend, I was watching on eof hte NFL pregame shows. Amy Trask, the former president of the Oakland Raiders, was talking about a discussion Al Davis had with Bill Walsh about holding on to players after they’d outlived their usefulness.
mr. Davis was very loyal to his guys. Walsh notsomuch, unless you’re Steve Young.
Is either way better? I don’t know. Both had three Super Bowl rings.
Who is remembered more fondly?
I don’t know, and I really don’t care to think about it.. Each is admirable in his own way.
I guess that I split the difference, really, though.
Yes, you’re loyal, but if someone can’t do what you need them to do anymore, be honest about it and move on.
(and here’s where my Gen X side comes out, and Nada Surf’s “Popular” floats through my scarred brain….)
So, back to the prompt……what have I accomplished?
There’s not just one thing. I think I’m a good husband. I think my loyalties are in the right place. I’m not terribly embarrassed by anything I’ve done; maybe that’s why I don’t focus on the things that have gone well.
So, not a lot of changes in five years, really.  I’m not good at tooting my own horn.

Are you listed as an organ or bone marrow donor? Why or why not?

Day 7 – 11/7/2012

Are you listed as an organ or bone marrow donor? Why or why not?
Yes. Because I really don’t need them after I’m dead; what do I care?
Whether there’d be much to salvage from my diseased body is a different story, altogether.

So, more 2012 recycling….
You see what I wrote above, so again….
Are you listed as an organ or bone marrow donor? Why or why not?
I don’t know? I don’t have a driver’s license anymore, so I don’t think I had to answer the question about the organ donor bit.
Would anyone want my bone marrow with the various maladies I’ve developed, the abuse to which I’ve subjected my body? I don’t know.
It’s incredible how heavy these questions seemed back then. Today, who really cares? By and large, anything that’s in my body can be used by whoever needs it.
I have told my wife that I would like whatever’s left of me to be fired into the sun. If they haven’t figured out the process when it happens, cremation works.
I hope that I’ll find motivation to do a few more in-advance prompts tonight/tomorrow. I’ll probably spill my Thanksgiving plans Monday, then write about how it went on Friday.