The Copaxone stopped working at some point (if it worked at all), and I had two new lesions between December and August, one of which was active during the scan last week. Other lesions grew in size.
*sigh*
I really haven’t noticed any significant deterioration, and, for the most part, I feel the same as I did in December.
I dunno.
Doctor would like to switch me to Tysabri. Tysabri has a rare, but often fatal side-effect. This is a big concern, obviously. That said, there’s now a blood test to determine susceptibility (which seems to hinge on exposure to a virus in the past). I guess we’ll see. I’m staying on the Copaxone for another three months, and we’ll re-evaluate in November. If I haven’t been exposed to the virus that causes the fatal side-effect, it’s likely going to be Tysabri. If I have, it’ll be Rebif or stay on the Copaxone.
Still, trying day, and I’m more than a little upset at the nurse who told me last week that there wasn’t anything new or active on the MRI.
*sigh*
Comments
3 responses to “Not good news”
Here’s to hope.
http://www.nationalmssociety.org/news/news-detail/index.aspx?nid=5374
You have every reason to be angry with the nurse. She spoke out of turn.
I have no real “words of wisdom”. I will keep you in my thoughts.
I’m also irked at the nurse.
But I’m working on getting over that to send positive thoughts, hope, and a virtual beer your way.