I accidentally put in two prompts for my trip to DC.
As I wrote the other day, I’m excited about some of the research being done with MS. It’s very rare when you see words like “miracle” coming out of trials.
The neurologist who saw me was definitely tracking with me, but they didn’t really have anything where I’d fit in nicely. She thinks I’m doing well on Tysabri.
The message exchange with my local near follows:
Thank you for the updates
All the supplements for the most part sound reasonable, are being studied in MS.
Hope you are otherwise doing well.
Dr. K
—– Message —–
From: BERGERON,SEAN
Sent: 11/16/2016 10:25 AM EST
To: Michelle B Kuczma, DO
Subject: Non-Urgent Medical Question
Dr. Kuczma,
I did go to Georgetown Monday. Unfortunately, they really don’t have anything they think I’d slot into well as a research target. If I wasn’t on Tysabri, and doing well, they might have something. Nothing yet on the remyleinization (sp?) studies.
I will stay in contact with the doctor to see if they’ve got anything that pops up. I told them they could contact you, or EVMS if they’ve got questions about what’s up with me.
She did recommend the following suppliants:
1000 mg flax seed oil per day.
5000 mcg Biotin 3x/day
1000 mcg B12 sublingual in the mornings.
Thoughts?
–sb
The trip, itself, was stressful. Maybe I’ll write some more about it tomorrow. I am very near the end of my Tysabri charge. On the bright side, I do kind of feel okay overall. The folks in the office did make those sorts of comments when I went into the office today.
By about 1510, my eyes were really going crazy, so I left. It took almost two hours to get home. Every seat on the bus filled as we headed south.
I will write more tomorrow when I have some time to breathe. The long weekend will be greatly-appreciated.