26

Bumping this up a day, because there’s a lot to say.

Small Business Saturday. Write about small businesses you frequent.

Fitting that this falls on the morning that the death of Fidel Castro goes public. Amazingly, their scientific research into the inevitability of Socialism led them to allow small business a few months ago.

For the American left, small businesses are similarly bad. They do whatever they want with their profits, which may not serve a larger purpose. That money should go straight to Goldman Sachs, right, Senator Schemer?

Perhaps unremarkably, as I look in on Facebook, I’m not seeing a lot of the left comment with despair about their dear comrade’s passing. No, it’s still kvetching about Trump being elected President. Newsflash, y’all, more than half of people voted against Hillary Clinton. Her campaign propaganda convinced me to not vote for Trump, but did nothing to sway me to vote for her.

Castro being gone, though, probably doesn’t mean a lot until the wheezing hulk of his Stalinist dictatorship finally collapses. Even the “good example” of Venezuela is teetering now.

The subjugation of the individual has never worked, and will never work.

But back to those evil small businesses, whose profits don’t flow into Boomers’ inflated 401Ks…

This morning, I went to MacArthur Pharmacy. I had a prescription I needed to pick up, but I also bought a few more things I needed. I also, because I like paying regressive taxes, bought some lottery tickets. It is a vice, but that’s okay so long as I buy it from the Commonwealth.

(If I could support a local liquor store, I’d probably go stock up on gin and rye. I’m low on both. Unfortunately, as I said above, vice is okay in Virginia, so long as you buy it from the Commonwealth. I’d have to go to ABC, which does nothing for small business. I also confuse the shit out of the progressive hipsters when I say if only weed is legalized in Virginia, you should have to buy it from the ABC stores….)

Later, I may head over to CURE for something to eat and drink. I was there during one of their first days open. I’m glad to see they’ve persisted. It is a little amusing to see the hipster intelligentsia complain about how many strollers are present these days. Umm, newsflash, as the last of Gen X, there weren’t many of us to begin with. Compounding the issue, because everyone was so worried about catching “teh AIDS,” we didn’t accidentally many babbies. There’s a lot of people just younger than we who are in prime baby-making age. Deal.

25

How was turkey day for you. If you’re celebrating on a different day, please elaborate (like my friends in Soviet Canuckistan).

Other than all the football after the Lions’ game, it was pretty good. My wife cooked some good food, and it was just the two of us together.

It was nice not being on somebody else’s schedule. We ate when we felt like it. We weren’t waiting for people to arrive. We weren’t worried about how long we needed to stick around after dinner. We weren’t worried about leftovers division. We weren’t worried about transportation.

She actually made and drank cocktails, then was dismayed that she’d started in on it before she could Instagram it. Yes, these are the sorts of things a Millenial white girl pretends she’s concerned about.

Unfortunately, sleep afterwards was hard in coming. I dozed off during the Colts-Stilluhrs barn-burner, then had trouble staying asleep overnight. I had my monthly Tysabri infusion this morning, so I was going to have to be up early, anyway.

I’m tired, and have been since my medical procedure last week. It’ll be a few days before things settle out.

It is nice that it’s been more than a month now since I was spending a night in the hospital. Things in the problem area seem to be behaving better, but I need to get back on a more-normal schedule.

The repairman finally started repairing our walls today, more than a month after the storm. At the same time, it’s not as bad as it was during the Nor’easter back in 2009.

Facebook decided that I needed to see pictures of that. Seven years ago…

Facebook has also taken to randomly deleting friends. Unlike the pox on humanity that is LinkedIn, I can count on one hand the number of times I’ve done that on purpose.

Speaking of LinkedIn, I had a recruiter champing at the bit a few weeks ago to hire me. We spoke, and she was working for one of the companies I’d pretty much sworn to never work for. I told her directly that it’d be a very hard sell. Paraphrasing, “okay, well, let’s talk later this week to see if there’s other opportunities that might be a better fit! My managers are very excited to hear from you!”

Then dead silence since. \^/hatever. Although there are things that frustrate me, I generally like what I’m doing now.

24

Free Write.

It’s just after three in the morning, and I’m writing because I’m “woke as fuck<” or something. (Isn’t that what the kids are writing these days? I blame the folks over at Mouthy Broadcast for that one.)

Was strange figuring out yesterday that it’s been a decade now since I was last on the radio.

I picked through some of my old diary archive to see what I’d written about for Thanksgiving, and there’s really not that much. I have something from 2002 about watching Danny Wuerffel play quarterback for the Redskins in Dallas.

There’s some about the last one with my dad, which was the first one with my new bride.

Since then, it’s been bits and pieces about where I’ve been, but nothing major.

i think what’s more interesting is that there were a few strange ones that I didn’t write about.

Driving all the way to Charleston, SC one year on Thanksgiving Day, because I’d had to work the night before. I think Ryan Leaf was playing Quarterback for the Cowboys. It was nasty weather on I-95; maybe even some snow in NC.

I also didn’t write about a very odd Thanksgiving where I ended up at some friends’ place because their mom didn’t want me having zero Thanksgiving. I think my family had gone out of town, and I was home working, and taking care of the dogs.

Thanksgiving was always a big thing with my mom’s family. I guess her grandparents held large gatherings (well, considering they had eleven kids, that was probably unavoidable) where the family would come gather.

My own memories, though, aren’t so marinated with family. As a kid, we were always somewhere away, and I can only think of a couple of times where we met up with family. I don’t remember people ever coming to see us; as if there was a way to get people to Europe. Or Kansas. Or Pennsylvania. Or Northern Virginia.

I might have mentioned that this is the first Thanksgiving that’s just Sarah and me. My SIL got relocated back to the East Coast, so my mom’s up in NoVA visiting her and my brother at their new place. I’m actually looking forward to just a night of the two of us. That also means I probably ought to try to go back to sleep.

Recycling back from OD, this was from 2012, which was the last sorta-okay year I had. I was still making okay money, still owned a car, etc.. I pruned the notes; they didn’t say that much, really.


NoJoMo Day 24 – 11/24/2012


Yeah, so was at my mom’s for belated Thanksgiving dinner. It went. Whatever. I’ll write more tomorrow.

1. What was the last thing that gave you a sense of wonder?
I honestly don’t know. With limited vision, it’s tough to get wonderment, you know?

2. Name a totally useless possession and how you came to own it.
There are many. I probably ought to pick one, no?


Both prompts are bigger problems today, four years later.


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21

Write about something you’ve had to re-learn.The impetus for this was something too personal to write about publicly.

As my nerves stop working, I’ve had to re-learn lots of things.

Many of them are attributable to my limited eyesight, unsteady balance.

I learn to do things one-handed, so I can steady myself with the other.

Perhaps oddly, I find myself doing a lot more things from the sinister side.

The neurologist I saw at Georgetown said I was a lefty. I don’t even. Maybe it’s that I’m wearing my Fitbit on my right wrist, and carrying my cane in my right hand, leaving my left free to do other things.

shrug

The TV news is doing pre-fab stories about smartphone apps for cooking. Yeah, about that.

How about just printing the recipe?

Part of my fun the past few days has involved getting my 401K funds from the company that shall not be named. I didn’t even think about the pittance I’d contributed when I finally GTFO of that hellhole until I got a notice that they were paying me a penalty and interest for a mistake they’d made.

I’m trying to be surprised.

But they’re giving me the run-around on getting it rolled over into my IRA.

Again, trying to be surprised.

I seriously need my Tysabri infusion. It’s weird; I’m exhausted, but not terribly sleepy.

This is a Monday for me.

At least there should be an interesting game tonihgttonight.

Apologies, to quote Katy, to my non-existant reader, but I really don’t have a ton to say today.

Twenty

Kind of a nadir in my motivation today. Yesterday, I apologized to the wall for hitting it; Friday’s infusion can’t get here fast enough.

Thankfully, I think I’m free of medical adventures this week, otherwise.

So, onto the prompt.

What did you want to be when you grew up? What are you, actually?

What did I want to be? You know, I don’t really know. There were several things. Obviously, a star in whatever sport was in season. (Except for, maybe, hockey, which I never could really get into.)

My dad was a soldier, so the military always had allure.

As a kid in the 90s, the space program was also something I paid a lot of attention to. The idea of space shuttles making regular trips to…yeah, I could do that. Until that cold day in 1986. (All the teachers had been watching in the smoking/teachers’ lounge while we were at lunch….after the accident, they gathered all of the classes of my grade into a single classroom and told us through tears, as that’d been the mission with the teacher aboard.)

But it wasn’t too long before I caught the radio bug. From listening to Royals’ gams on my He-Man AM radio in Kansas to listening to stuff on AFRTS/AFN out of Stuttgart (certainly the first place I was Rick-rolled.)

When we came back to the States, my dad was stationed at the Pentagon, so I was immersed in late-80s/early-90s DC zookeepers. Don & Mike. The Greaseman, who’d replaced Howard Stern, etc.

After another stint in Germany, and a year in exile in South Central PA, I started to seriously consider doing it for a living.

I didn’t have a great voice.
I didn’t speak terribly clearly.

I thought I could figure it out, though.

I took telecommunications classes in high school, where I did a bit of voiceover work for TV. Again, it wasn’t really my forte, but it was something I enjoyed.

I won an Air Force ROTC scholarship in high school.

I ended up not accepting the scholarship. Not only did I have concerns about being able to meet the physical requirements, I’d failed the uncorrected vision test during my physical. At the time (and it may still be true), if you couldn’t test 20/20, you couldn’t fly. So, no chance of even doing something like driving a C-130, ala Rick Perry.

I would be doing something on the ground. That didn’t sound too interesting.

Furthermore, I wouldn’t have been able to choose my own major. I was provided a list of majors, told to rank my top five, then they would tell me what I would be.

There was also the issue of finding a school with Air Force ROTC. I really only had the option of schools in Mississippi. My dad was on active duty, and a Texas resident. I had a Mississippi driver’s license. I was downloaded in Florida, so I was looking at Florida State.

I think Mississippi State was the only school that had both the engineering programs I would have had to choose. I wasn’t enthused by Starkville. (Though it was better than the promise of disownership my parents gave had I chosen Ole Miss….) Nor was I enthused by the other part of the deal with the Air Force scholarship. I would be on call as a reserve enlisted Airman for the time I was in college. After I finished, I’d be on active duty for at least four years, but they could choose to make me stay on active duty for eight.

The prospect of devoting, potentially, the next twelve years of my life to the Air Force without being able to fly didn’t sound at all like something I wanted to do. One of my high school football coaches had played at the Air Force Academy. I really didn’t envy him running the weather detachment at a remote Army Airfield.

What sealed the deal was FSU’s determination that I wouldn’t qualify for in-state tuition.

On my dad’s urging, I applied at Christopher Newport University. I enrolled in Army ROTC, which didn’t have the same sort of reserve requirements, and only a two-year commitment following graduation.

The ROTC situation at CNU was strange. We were cross-enrolled at William & Mary. While our classes were at CNU for the first two years, the third year was split between CNU and W&M. The fourth year was pretty much all at W&M.

Whatever. It was cheaper for me to go to CNU as an in-state student without a scholarship than it would have been for me to go to FSU on scholarship.

I tried hard to make sure I won an Army scholarship. Of the about 70 of those of us in the CNU first and second year programs, I think only one eventually got a scholarship and was commissioned. A friend ended up dropping out of school, and enlisting in the Army. He went to warrant officers’ school, and won the distinguished flying cross in Iraq.

After my first year, though, I was behind. I was having trouble meeting the physical requirements. I could run an awful long way, just not very quickly. I was fine on sit-ups, but iffy on push-ups.

I got along with the instructor my first year. The second year, notsomuch. Between her, and the W&M product LTC who wasn’t going to make COL, and was serving out his time so he could retire with more money, I judged my prospects of a scholarship as pretty low.

I dropped out of ROTC. The steady sting of Bs in ROTC was bringing down my GPA, anyway.

I got a job at the Go-Kart track at the post my dad used to command. The following summer, I got a job doing Master Control at a local UHF TV group. The work wasn’t terribly exciting, but it paid my meager bills. Even though the shifts were long, after I’d done the prep programming (tape sequencer) for the shift, I was basically just there monitoring things for the rest of the shift. That gave me time to read, and do a bit of writing on my school assignments.

It wasn’t a bad few months, really. I could have seen myself working there for a long time. I’d scheduled my classes so that I could be in class during the day, and tending the station nights and weekends. I did some camera work for, of all things, women’s fast pitch softball.

Then the cable merger came (courtesy the Communications Act of 1996). One of the big cable companies had bought up a bunch of smaller local cable companies. Because of that, the stations were not powerful-enough to meet must-carry requirements throughout the area. While the station had something like 85% market coverage, it was on three different frequencies over the air. Wanting another cable channel, the big company decided to pull the local station. I, along with everyone else, got laid off.

During my final two weeks, I decided to go check in on Tony Macrini, who was doing a promotion somewhat close to home. I told him what was going on, and he told me to send him a resume, and a tape.

Shortly thereafter, I got a call from Dave Morgan to set up an interview.

I went down for an interview.

Since I didn’t have a tape to send, he picked up a piece of paper from his desk, and told me to read it. It was Art Bell’s resignation address.

You can read. You’ve got a good voice. We pay seven buck an hour.
Okay.
So, you have a wife and kids?
No.
Ah, so a single guy. You have another gig; this isn’t many hours.
Yeah, I’m a college student.
Wait a minute. How old are you?
Nineteen.

I was working Friday and Saturday nights. I had something like two breaks an hour, and could read/write the rest of the time.

Within the next year, I was working six days per week. Not a ton of airtime doing live assist work, but I did get to do things like write local news and weather forecasts.

I also took on repairing some of the broken IT stuff around. That wheezing 286 running the AP wire? Yeah, I can fix that.

After I graduated, I eventually was moved to doing mostly iT work. When I left seven years after I started, I was only on the air maybe two hours per week. The rest of my time, I was dealing with broken PCs for the rest of the staff.

In 2005, I started doing real government engineering work. I’ve been doing specifically IT work since late 2007.

Could I elaborate a lot more? Absolutely. Am I going to stop now? Yep.

Two-thirds of the way through.

Nineteen

This prompt has been difficult. I have a draft of some extensive writing that I’ll probably recycle parts of later. But I’m going to do this as simply as I can.

Recap of your year month-by-month.
January
Went to Shmoocon. Didn’t find a new job there, but did eat oysters.
February
Cold. Work continued to suck.
March
Not as cold. Work kept sucking.
April
Accepted a new job, and got the fuck out of the hell I’d been in.
May
Sorta started working the new job. Ended up going to DC for a GS interview, anyway. Interviewed for a GS slot down here, got an offer, and turned it down. Sorry, I saw my salary revert to 2007-levels in 2013. I’m not going back to 2004.
June
Settling into something resembling normal back at home.
July
That’s hot. I was working from home a lot because of the oppressive heat. I started writing in the month before my birthday.
August
I got older. Football.
September
Hospital stay number one.
October
Hospital stay number two.

November is underway. No hospital stays. fingers crossed December is TBD.

Eighteen

Write about three things you did for the first time in the past year.

Okay, so three things I’ve done this year that I’d never done before.  Please excuse the odd organization;  i started with bullets, and I’m not sure if that was the correct way to go.  There’s multiple paragraphs for each.  Of course, if I was writing a DoD PowerPoint presentation, they’d be awesome.

Anyway, on to it….

  • Ate a raw oyster. A few, actually. They were listed as a specialty at my friend’s restaurant. I’d been considering doing it. The opportunity presented itself, so I went for it. Reaction? Not bad. Probably something I wouldn’t go for often, but it was good. If you want an example of what a nerd I am, in the months leading up to that time, I actually googled how to eat them. Do you chew them? Swallow whole? What? Obviously, roasted or fried you chew, but what of the raw variety. The answers I found said, essentially, take a few bites, let the flavor circulate around your mouth, then swallow. Yes, this is a pretty lukewarm reaction, but I’ve found months later that I have a craving again. It’s the oddest damned thing.
  • Spent a night in the hospital. This one didn’t happen until it was oyster season again. Obviously, they don’t serve those there. Both times were terribly unpleasant. One night the first time, two the second. The second instance was one day shy of a month later. Both were due to infections. Both of different bacteria. Both, ultimately, of the same cause. Protip: when you’re killing your immune system every four weeks, inserting foreign bodies into your body is a really bad idea(TM). Ultimately, I place the blame on one medical provider. I won’t write much about this here because I’m still considering all options (and, yes, that includes whatever legal remedies might be available). But, in my current job, I have no leave at all. None. I don’t even get paid holidays. If I’m not working, I’m not getting paid. I was also completely out-of-control. When I was younger, I prided myself in my ability to put up with nearly anything. Since I got sick, I’ve had to get over that. There’s things that I just can’t control anymore. My body is included in that growing list. That includes my emotions. I’m tempted to go back to some of what I wrote in about 2005 where I felt like I was completely numb to everything. Things have certainly changed. There’ve been high highs, and low lows. Sarah and I chuckle at one of our animated sons, Butters from “South Park,” (And if you know either of us, you can see how that’s our boy….) who was sitting on a curb crying after his girlfriend (a waitress at a place modeled after Hooters) dumped him. Stan was sitting nearby despairing about getting blown out by his new circle of friends. “I’d rather be a crying little pussy than a faggy goth kid.”
  • Walked away from a terrible work situation. Here, I’m talking about my last job. I don’t even try to miss it, knowing I won’t be able to. I’m still on decent terms with a few of the people I encountered, but there’s others I hope I never speak to again. Aside from the last two jobs, I’ve never felt that way before. Again, there’s a lot more I could say on this one, but won’t. I was used. I hope the people responsible have memories so short that they can look themselves in the mirror again someday.

I could write for hours about these, but I think I’ve said enough.  The last one is a bit of a cop-out;  I could have written about the sheer volume of whining about the election.  Oh, you’re going to have a peaceful protest?  Yeah, I give that about half an hour.  Also, nobody cares.  The Commonwealth of Virginia supported a loser.  Again.  This has been true many times in the past.  So, too, that I voted for whoever lost.

But I get it.  I’m a bigot because I didn’t vote for the party of historic racism.  Hmmmm…okay.


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Seventeen

I accidentally had a second prompt for my trip to Georgetown.

That happened, and I described a bit of it yetsterday.

Takeaways I didn’t cover yesterday:

With those out of the way, what else do I have to say….?

I’m trying to keep an open mind about the electoral results. This, really, could be real change in Washington. Notsomuch due to the Trump surrogates’ bigotry, but because at least it’s a completely new crowd.

Regardless of what happens, it’s not going to be an administration full of recycled Ford and Clinton folks (which is what we saw with the last two administrations). If an opportunity presented itself to get me to DC to work in the Administration, I don’t know that I’d turn it down. (Though they probably would want nothing to do with me after I didn’t vote for them…..)

Sixteen

I accidentally put in two prompts for my trip to DC.

As I wrote the other day, I’m excited about some of the research being done with MS.  It’s very rare when you see words like “miracle” coming out of trials.

The neurologist who saw me was definitely tracking with me, but they didn’t really have anything where I’d fit in nicely.  She thinks I’m doing well on Tysabri.

The message exchange with my local near follows:

Thank you for the updates
All the supplements for the most part sound reasonable, are being studied in MS.
Hope you are otherwise doing well.
Dr. K
—– Message —–
From: BERGERON,SEAN
Sent: 11/16/2016 10:25 AM EST
To: Michelle B Kuczma, DO
Subject: Non-Urgent Medical Question

Dr. Kuczma,

I did go to Georgetown Monday. Unfortunately, they really don’t have anything they think I’d slot into well as a research target. If I wasn’t on Tysabri, and doing well, they might have something. Nothing yet on the remyleinization (sp?) studies.

I will stay in contact with the doctor to see if they’ve got anything that pops up. I told them they could contact you, or EVMS if they’ve got questions about what’s up with me.

She did recommend the following suppliants:

1000 mg flax seed oil per day.
5000 mcg Biotin 3x/day
1000 mcg B12 sublingual in the mornings.

Thoughts?

–sb

The trip, itself, was stressful.  Maybe I’ll write some more about it tomorrow.  I am very near the end of my Tysabri charge.  On the bright side, I do kind of feel okay overall.  The folks in the office did make those sorts of comments when I went into the office today.

By about 1510, my eyes were really going crazy, so I left.  It took almost two hours to get home.  Every seat on the bus filled as we headed south.

I will write more tomorrow when I have some time to breathe.  The long weekend will be greatly-appreciated.

Fourteen

On being sick.

I understand why I chose this prompt for this date.  I wrote much of this on the train heading to Washington DC to visit the folks at Georgetown School of Medicine.  I wrote a bit about it recently.

The potential to get some of my life back would be worth getting my femurs drilled and Humira, or chemotherapy.

This is not a condition I’d wish on my worst enemy.  (And if you know who my worst enemy is, please let me know, because I really don’t know who’d that’d be at this point.  There is one individual I’ve dealt with professionally, recently, that I’d just assume never speak to again, but…)

So, I find myself trying to decide what would be the best way to tackle this.

The less-pleasant parts I really don’t feel like relating, but they’re all a part of the overall experience.

The most maddening part, though, is not one of the more disgusting things, honestly.  I really am nearly blind these days.  When I was younger, I’d say that I’d much rather lose my vision than my hearing.  I was working in radio, and there was the big story about the things Rush Limbaugh was going through with his opioid0induced hearing loss.

Obviously, working in radio without being able to hear would be very difficult.  But doing just about anything without decent vision is just as tough.

No, I really can’t see what you’re pointing out.

No, I can’t tell the difference between those colors.  (And this is more than being lectured on the differences among cream, Ivory, and other shades of white.)

Saturday, we took my mother to the football game between her alma mater, and my wife’s school.  Not only did her school not even who up, I couldn’t really see anything that was going on on the field.  Getting up and down to our sets with the stadium steps with no handrails was difficult enough, but…..

It was also rather chilly.  Normally the cold doesn’t bother me much anymore, unless I’m out in it for a long time.

So, not a particularly enjoyable experience.  I think my mom had a good time, though, which is what matters.  She and my wife got to experience the sorts of things I deal with being reliant upon public transportation.  You can get pretty much where you need to go, but it takes a long time.  I guess it took probably about 40 minutes to get from our place to the university;  it’s fifteen by car.

At the same time, it probably cost as much in transit fare as it’d have cost to park near the stadium.    And no need for a long-distance walk.

I can still walk some, sorta.  I’m good for about a block and a half most days.

Trying to get though this is annoying me.  I guess I’ll revert to the list from NMSS.  It might be easier to say which of those more common symptoms I don’t have.

I really don’t have emotional changes or cognitive changes.  The others listed I do have to some extent.

The less common symptoms, really, I only deal with a few.

–cut–

So, the appointment went okay.  I have a prompt for a couple of days in the future to write about it more thoroughly.

At this point, since I’m on the Tysabri, I should stick on that until it quits working, or I test positive for JC Virus.

Who knows.

Initial impression:  They’ve got their stuff together, and I think I’d be happy to be treated there if/when we move up.  It’s probably an older facility, but they’re doing some of the newer interesting research work.  That matters to me.

Much as I appreciate EVMS, MS isn’t a big focus.  If I had diabuatteus /Wilford_Brimley_voice, I’d be interesting.

As I said, I will see what happens.

We are sticking with the same insurance arrangement as this year  Yes, it’s going to cost something like $120/mo. more.  Yes, it’s all after-tax.  But I’m in a strange employment situation, and this is what I have to deal with courtesy the Patient Protection and Affordable Care Act.

That’s probably going to go away with the minor change in government, but I’m sure it’s going to take awhile.

I could probably write more, but I’m tired. My current debate is whether I try to make it in to the office tomorrow. Or work from home. I don’t know.